Psoriasis Information and Resources - Where to Look
Living with a chronic condition, like psoriasis, can sometimes lead you on a search for more facts and information. Speaking to a healthcare professional is always a great way to get advice and guidance, but there are some online resources available that you might find helpful when managing your condition.
We take a look at some of these psoriasis resources here.
The NHS website is a trusted source of information and covers lots of different conditions, including psoriasis, eczema and dandruff. You’ll find a brief overview of symptoms and treatments, as well as information about getting a diagnosis. The NHS has also produced a video about psoriasis, with consultant dermatologist Dr. Mark Goodfield, that goes into more detail about the condition.
The Psoriasis Association is thought to be the leading national charity for people affected by psoriasis in the UK. Alongside funding valuable research, the PA provides information, on topics such as which treatments you might receive through a GP, which you might receive through a dermatologist and which are no longer available. You can visit the forum on the website, where members share their own experiences and tips for living with psoriasis. You may find this area useful if you are looking to build your support network.
The PA is currently undertaking a survey called PsoProtectMe, in collaboration with St John’s Institute of Dermatology in London. The survey aims to assess out how Covid-19 has impacted those living with psoriasis and how the disease may potentially interact with psoriasis treatments.
Psoriasis and Psoriatic Arthritis Alliance
Another website which specialises in the condition is the Psoriasis and Psoriatic Arthritis Alliance, or PAPAA. The focus of this website is to provide objective and evidence-based information that supports people with psoriasis and psoriatic arthritis in managing their condition.
PAPAA have produced a series of video case studies which help to explain some of the challenges and barriers that come with psoriasis. Although these videos were recorded some time ago, you might find it helpful to hear about other people’s journeys with psoriasis, or even to share them with your friends and family to help them better understand your condition.
The PAPAA website answers common questions about psoriasis, has downloadable leaflets on a range of topics and also provides information on coping strategies that some people find useful, like cognitive behaviour therapy and skin camouflage techniques.
British Association of Dermatologists
As psoriasis is a skin condition, it’s also covered by the British Association of Dermatologists. Here you can find a detailed patient leaflet, which includes information about the different types of psoriasis, patient support groups, lifestyle advice and much more.
British Skin Foundation
The British Skin Foundation is the only UK charity that raises money to fund research into all types of skin disease - and this includes psoriasis. Although a primary focus for the BSF is to financially support research, their work is also targeted at raising awareness of skin diseases in the wider community; educating people and breaking down stigmas.
There is a dedicated page for psoriasis on the website, where you can access the latest research, as well as general information about the condition. BSF has also partnered with Talk Health on a forum which facilitates conversations about an array of skin conditions.
Outside of these specialist organisations, there are health-focused websites such as Healthline and WebMD, which share information about psoriasis. You can discover tips and advice on the Polytar blog too, or tune into our expert video series with trichologist Eva Proudman below:
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If you’re concerned about your symptoms or are seeking diagnosis, it’s important to speak to a healthcare professional.